Purpose
The ORI Data Catalog is intended to assist researchers in identifying available data sources that may be used for opioid-focused or adjacent research.
Many of these data sources are subject to data use or data sharing agreements and are under the stewardship of ORI partners or collaborators. However, some of these data sources are publicly available and ready for immediate use. If interested in utilizing one or more of these data sources, or if you have any questions relating to the content, please reach out to the ORI staff at [email protected].
All of the data sources below have been sorted into three access levels:
Publicly Available
Restricted: Other
Restricted: Potentially Available to IHPI Members
Within these three access levels, data sources have been further categorized by type. Please note that some data sources may be listed within multiple types. Many of these data sources have the potential for patient, provider, facility or area-level linkages, within and across categories, allowing for novel research. Please click on each access level and/or type to view the list of data sources, available level of analysis, years available, linkage potential and other details.
Please reach out to the ORI staff with any questions or concerns.
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The Adolescent Brain Cognitive Development (ABCD) Study is a long-term study of brain development and health of greater than 10,000 children (annual follow-up for 9 years). ABCD study enrollment was completed as of 10/21/18. The dataset does contain some information on substance use.
2018-2025
Geography: National
Lowest Level of Analysis: Person
AHA Survey data are provided by more than 6,200 hospitals and 400 health care systems, featuring over 1,300 hospital data points. Data is currently available from 2009 – 2024.
Geography: National
Lowest Level of Analysis: Hospital
All of Us data is a research program by the National Institutes of Health (NIH). All of Us data consists of EMR, biosamples and bioassays (genomics), surveys, physical measurements, wearable devices (digital health), and partnered research studies. In the coming years, All of Us will enroll more participants and make more types of data available, as funding allows.
Geography: National, Multi-State, Michigan
Lowest Level of Analysis: Person
The American Community Survey (ACS) is a nationwide survey that collects and produces information about our nation’s population every year.
The ACS releases three different products each year roughly one year after the data are collected in the form of:
- 1-Year Estimates – 12 months of collected data; data for geographic areas with populations of 65,000+.
- 1-Year Supplemental Estimates – 12 months of collected data; data for geographic areas with populations of 20,000+; simplified versions of popular ACS tables.
- 5-Year Estimates – 60 months of collected data; data for all geographic areas (including granular census tract and block group geographies).
Geography: National, Multi-State, Michigan, Census Block
Lowest Level of Analysis: Person
The Americans’ Changing Lives study is the oldest ongoing nationally representative longitudinal study of how social, psychological, behavioral, medical, and environmental factors affect health outcomes and health changes over the adult life course. ACL is administered by the Social Environment and Health program at the University of Michigan Institute for Social Research. ACL data includes measures of alcohol and tobacco use. Most data (survey, genetic) are publically available, though others are restricted (death data, geographic identifiers, etc.)
Geography: National
Lowest Level of Analysis: Person
This is a prospective, observational longitudinal study that aims to assess the impact of postsurgical pain on mood, function, and overall health outcomes in adults undergoing a variety of surgical procedures at the University of Michigan. Participants will include individuals undergoing surgeries such as ACL repair, ankle surgery, knee arthroscopy, shoulder surgery, total knee arthroplasty (TKA), total hip arthroplasty (THA), distal arm/hand surgery, breast surgery, hysterectomy, inguinal hernia repair, myomectomy, prostatectomy, or thoracic surgery. The study will track pain, mood, functional status, and health outcomes over time, providing valuable insights into the long-term effects of surgical recovery.
2010 – present
Geography: Michigan
Lowest Level of Analysis: Person
A cross-sectional telephone survey that state health departments use to collect prevalence data among adult U.S. residents regarding their risk behaviors and preventive health practices that can affect their health status. Respondent data is forwarded to the CDC and aggregated by state annually.
Geography: National, Multi-State, Michigan
Lowest Level of Analysis: Person
This directory, maintained by SAMHSA, provides a listing of practitioners authorized to prescribe buprenorphine to treat opioid use disorder by State.
Geography: National, Multi-State, Michigan
DAWN is a nationwide public health surveillance system that captures data on emergency department visits related to recent substance use and misuse directly from the electronic health records of participating hospitals. SAMHSA administered DAWN from 1992 through 2011 (legacy DAWN) and reestablished the current version of DAWN in 2018.
Effective June 13th, 2025, DAWN, discontinued new data collection as part of a broader effort to align agency activities with agency and administration priorities.
1994-2011; reestablished in 2018; discontinued 2025
Geography: National, Metropolitan Statistical Area
Lowest Level of Analysis: Person
CDC’s Overdose Data to Action in States (OD2A-S) program supports collection of nonfatal overdose data through the DOSE system. Data reported to DOSE are captured by health departments and describe local, state, and national levels of nonfatal overdoses. Currently 49 states and the District of Columbia (D.C.) participate (47 states and D.C. submit syndromic surveillance data and 34 states and D.C. submit discharge data). Note: MI submits both.
Jan 2019 – Jan 2026
Geography: National, Multi-State, Michigan
Lowest Level of Analysis: State
Community collaboration allowing health systems using Epic to gain insights from combined data from over 200 million patients. Not currently available.
The University of Michigan Health and Retirement Study (HRS) is a longitudinal panel study that surveys a representative sample of approximately 20,000 people in America, supported by the National Institute on Aging (NIA U01AG009740) and the Social Security Administration. Through its unique and in-depth interviews, the HRS provides an invaluable and growing body of multidisciplinary data that researchers can use to address important questions about the challenges and opportunities of aging. It contains publicly available survey data as well as restricted cognition, biomarker, administratively linked, and genetic data. Survey data contains measures on drug and alcohol use, including the use of opioids. Though restricted, HRS also has data that allows for administrative linkages with Medicare and Social Security.
Geography: National, Region
Lowest Level of Analysis: Person
A multi-payer, longitudinal commercial claims dataset that covers one-third of the employer-sponsored population in the U.S. This dataset includes about 50 million covered lives annually from all 50 states and D.C. The data is de-identified, HIPAA and anti-trust compliant.
Geography: National, Multi-State, Michigan
Lowest Level of Analysis: Encounter/Claim
This data set includes state licensing information maintained by the Michigan Department of Licensing and Regulatory Affairs (LARA) for licensed health care facilities and agencies. Health care facilities and agencies include freestanding surgical outpatient facilities, homes for the aged, hospitals, hospice agencies, hospice residences, nursing homes, and psychiatric hospitals/units. It includes the following attributes: license number, facility type code, facility name, street address, city, state, ZIP code, and county.
Geography: Michigan
A family of healthcare databases that includes the largest collection of longitudinal hospital care data in the U.S., with all-payer, encounter-level information beginning in 1988. Does not contain Protected Health Information as data is not identifiable.
- Nationwide Emergency Department Sample (NEDS)
- Contains national estimates of emergency department visits.
- Nationwide Inpatient Sample (NIS)
- Nationwide Readmissions Database (NRD)
- Contains nationally representative information on hospital readmissions for all ages, with approximately 16 million discharges per year.
- State Ambulatory Surgery and Services Database (SASD)
- Encounter-level data for ambulatory surgeries. Varies by state on if data includes only hospital-owned facilities or also non-hospital owned facilities. Currently available for Florida, Iowa, Maryland, Nebraska, New York, and Wisconsin.
- State Emergency Department Databases (SEDD)
- Captures emergency visits at hospital-owned emergency departments that do not result in hospitalization. Currently available for Arkansas, Iowa, Kansas, Minnesota, and Nebraska.
- State Inpatient Database (SID)
Geography: National, Multi-State, Michigan
Lowest Level of Analysis: Encounter